The 2nd Annual Upper Midwest Rare Epilepsies Conference will take place virtually on Saturday, May 7, 9, and 11, and will feature presentations from leading medical professionals, family caregivers, and epilepsy researchers as they present on topics including new therapies, research, wellness, and planning for the future.
With 3.4 million people diagnosed with epilepsy in the US and 1 in 26 people developing the disorder in their lifetime, an increasing number of people are being diagnosed with a form of rare epilepsy. Though advances in research and genetics are resulting in an increased understanding of many of these syndromes, there is still much to learn. Rare epilepsies such as the Lennox-Gastaut Syndrome, Doose Syndrome, and others can greatly alter a person’s life, and the more we can understand them, the better equipped we are to fight the challenges they can present.
Saturday, May 7, 2022
Monday, May 9, 2022
Wednesday, May 11, 2022
Zoom Webinar
Individuals and caregivers impacted by a rare epilepsy diagnosis
Angie May, Board Chairperson, Epilepsy Foundation of Michigan
Jacqueline French, MD, Chief Medical and Innovation Ocer, Epilepsy Foundation; Epileptologist, NYU Langone Health
Moderated by
Glen Lloyd, Executive Director, Epilepsy Foundation of Minnesota
Nicole Williams Doonan, MD, Pediatric Neurologist, Gillette Children’s Specialty Healthcare
Erica Sieg, PsyD, Neuropsychologist, Northwestern Medicine
Kristy Kargel, Parent of Child with a Rare Epilepsy
Moderated by
Glen Lloyd, Executive Director, Epilepsy Foundation of Minnesota
Karen Utley, President and Co-founder, International Foundation for CDKL5 Research; Coordinating Committee Member, Rare Epilepsy Network; Director of Patient Advocacy, Texas Rare Alliance
Moderated by
Ayesha Akhtar, MPH, Director of Education, Epilepsy Foundation of Greater Chicago
Peter Warnke, MD, Neurosurgeon and Researcher, University of Chicago Medicine
Moderated by
Brandy Fureman, PhD, Chief Outcomes Officer, Epilepsy Foundation
Glen Lloyd, Executive Director, Epilepsy Foundation of Minnesota
Nancy McNamara MD, Pediatric Epileptologist, Assistant Clinical Professor, Codirector of Epilepsy Surgery Program, C.S. Mott Children’s Hospital University of Michigan Health
Moderated by
Renee Roederer, Community Care Director, Epilepsy Foundation of Michigan
Priyamvada Tatachar, MD, Pediatric Epileptologist, Ann & Robert H. Lurie Children’s Hospital of Chicago Assistant Professor Northwestern University School of Medicine
Moderated by
Ayesha Akhtar, MPH, Director of Education, Epilepsy Foundation of Greater Chicago
Tom Stanton, President of Danny Did Foundation
Moderated by
Kristin Dostal, Executive Director, Epilepsy Foundation of Wisconsin
Douglas Smith, MD, Pediatric Epileptologist, Minnesota Epilepsy Group
Moderated by
Glen Lloyd, Executive Director, Epilepsy Foundation of Minnesota
Connect with your local Epilepsy Foundation Office:
epilepsychicago.org | 800-273-6027
epilepsymichigan.org | 800-377-6226
epilepsyfoundationmn.org | 800-779-0777
epilepsywisconsin.org | 608-665-1848